I could cry if that helps. I feel so bad.
IF any dokter reads this message and thinks you could help me, please send me a message!! Please do!! I tested positive 9 weeks ago. then 3th week I was completely fine! I walked 10k steps everyday for more than 10 days. Suddenly (around 4/5th week) I had very painful upper legs and barely able to walk. Like lots of needles were stabbing me just above my knee. When I lie down, it got less. I took full bed rest for 3 days. Then 3 days later I had neurological issues; could not watch with my eyes to peoples face, if I did, it was very pain full inside of my head!
I went that day to the ER. Basic blood tests and a CT scan showed nothing.
Then the coming 3 weeks after this date, it slowly got worse to the point that I am now not able to tolerate:
- Lights, my eyes feel so painfull even with the slight amount of light.
- Ears; I cannot listen to people when they talk to me, then my head goes crazy / painfull.
- Talking; if I start talking, after 10 seconds it hurts very much in my head, if I continue, I just am not able to talk at all
- Walk; my legs slowly got worse, first I could walk in the house freely. Now I am not able to walk for more than 8 seconds before my legs stop working
If I try to forse myself to talk or listen, my tongue gets white (see picture below). My GP thinks this is stress related and wants to wait. Even that during these 3 weeks it is slowly getting worse. I am not even able to talk to the GP anymore as I cannot talk for more than 10 seconds. Also during sleep, I have sudden headaches right before I fall asleep. They are the most painfully headache I had my life, they last around 10 minutes each time.
Please note! After covid (1th and 2th week), i was fine for 10 days! All the issues started around 4th week.
I cried a lot how less care there is for if you have any possible post covid issues. C-support has a waiting cue of more than 6 weeks. The GP does not see any need to further investigate as this is probably covid related. I am now lying down in home. around 16 hours a day lying down, while I am not tired, I am also not possible to do any thing else. I feel like I am in a prison. My mind is working perfectly, but my ears, eyes and mount are not able to expose myself. I feel trapped.
I was so far with this project. Everything was getting ready to deliver. I really hope this can get fixed somehow. For that time, sorry everyone that I did not manage to deliver the system quicker.
Lots of love to everyone.
If you think you can help me in any way or now a better option for care. Please do contact me below. I will be forever gratefull.